Hi absolutely everyone! I cannot imagine that we are on the cusp of Labor Day and summer coming to a shut. The final five to 6 months have been a total blur and this summer time, in individual, has flown by. There’s been hospitals (chemo, stem mobile harvest, operation), clinic appointments, and driving back and forth to New York.
But, one foot in entrance of the other and a single day at a time, we are grateful to be heading into a new year with a strong boy and hearts total of hope.
Dominic experienced a active initially few months of August…
🔍 Initial, he experienced a new established of scans (MRI + MIBG) moreover another bone marrow biopsy. The scans still show ailment during his bones but most of the places are “dimmer” than right before, and the bone marrow involvement diminished by around 50%.
So, there is however perform to do, but there is an advancement. And! Dominic did the two of the scans without anesthesia (he has been sedated formerly for the reason that you have to lay completely however and the MIBG is more than 2 several hours). He’s a rock star.
🏥 Upcoming, he experienced his very first spherical of immunotherapy. The antibody he’s supplied targets the protein of neuroblastoma cells and considering the fact that they typically sit on nerve cells, there is sizeable nerve suffering accompanying the remedy. The infusion is quick (45 minutes) but intensive.
There is a lot of pre-treatment and suffering management for the duration of and following, and he would mainly slumber the overall relaxation of the day afterward. But, the treatment plans are outpatient so no hospital stays, and they never impression counts like chemotherapy, so no neutropenia or blood or platelet transfusions.
🦸♂️ Then, he crossed off another large hurdle… radiation. He did this awake with no anesthesia as well… two times a working day for five times, he was strapped down making use of a distinctive mask that was molded to his head and upper entire body to preserve his head and neck in the specific very same placement just about every time (his clavicle was radiated thanks to the cluster of diseased lymph nodes that have been there, as very well as the tumor bed in his abdomen). An awesome lady who performs there has the kids decide on what they want their masks to be and then personalized paints them… Dominic selected Iron Gentleman. There are some unbelievably unique people in this globe.
He could also pick whatever music he required to be piped in just about every time and chose Christmas songs every working day 💕🌲 He totally rocked it and the men and women doing work there ended up absolutely phenomenal.
➡️ Next… we get to be home for a pair of weeks, then it’s back again to NY for yet another spherical of immunotherapy, a new set of scans, and yet another bone marrow biopsy.
📘 In the meantime, he started off kindergarten this week! He’ll be joining course practically right until his oncologist gives him the go-in advance to attend in person, which we’re hoping will be late September.
💈 His eyebrows, eyelashes, AND hair have all started expanding back! He’s experienced a ton of strength, has attained back again all of the pounds he shed immediately after surgical procedures and that past round of chemo and is normally carrying out genuinely, really nicely.
❤️ Thank you all for your ongoing prayers, it suggests so considerably to our household.
In other information, I am preparing to get some emails scheduled out heading into the slide and holiday getaway time to refresh some web site articles. So, you can glance ahead to me popping into your inbox extra regularly in the coming months 🎉